Tag Archives: IVF

Progress? I’m not sure

So what’s happening?  Well this all started with writing down my journey to help another couple faced with SI.  Then it became about achieving an ambition to have a book published which then turned into a mission to demonstrate to publishers just how big an audience is out there needing information on this topic.

It is now a crusade.  Having spent 2 years (whilst setting up a new business and running a family home) doing my bit to raise the profile of SI, I’m feel we’ve taken one step forward and two steps back.

So yesterday it was finally confirmed that SI would not feature at the Fertility Show in November because ‘it didn’t fit in’.  I was gutted.  We have recently determined that statistic that 1 in 3 of the 1 in 6 couples struggling with fertility already have a child – that’s 1 in 18 with Secondary Infertility.  It’s great to now know this stat, but it’s frustrating that people still don’t recognise the condition to give it focus.  It’s easy for them to say “Secondary Infertility is important” but still they don’t give it the attention and exposure it deserves and as a consequence the condition remains in the dark, as do sufferers.

My first problem with SI was simply that I didn’t know the name existed.  If we could just shout the name out from the rooftops more sufferers would become engaged.  If we could get them to identify with their own situation they would know where to seek more help.  That would be a huge start.

If we could help treatment providers and support networks to learn how to deal with SI sufferers and their unique situation it would help make SI “fit in” and therefore provide the appropriate information and support in clinics.

My messages are simple

Secondary Infertility is still Infertility

Sufferers are not alone, should not feel guilty and are not greedy

There are unique and specific challenges that need to be addressed for sufferers

More people in the Infertility profession need to recognise the condition

Communication and awareness must be improved

Next month I will be launching a brand new website with information and support specifically for SI sufferers.  A brand new online support and information portal that is UK based.  We may have not made it to the show in 2016 but boy oh boy, 2017 here we come!!…….

 

 

 

 

 

 

 

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Most couples will try anything!

So today, 22 January, is officially the day most New Years Resolutions are given up.  I’ve long since given up giving up things for the New Year as without a goal I’m not very good at maintaining them, so I guess I’d be one of the ones falling by the wayside today, had I tried in 2015.

It’s amazing how a goal can focus the mind and body and spur you on to change your habits and your attitude towards something you once loved.  When I knew we wanted another child it was the easiest thing in the world for me to adapt my diet, give up alcohol and keep myself fit and healthy. It was actually empowering as it was one of the few things I had control of.  It wasn’t an option to give up, to quit or to even ignore the advice to try to get my body in the best possible condition to nurture an embryo.

For some though, it’s still not so easy.  Even with the quest for another child so important to them, giving up alcohol, smoking or losing weight still proves really tricky.  Of course none of these will get you pregnant but to my mind, if anything could help improve the condition of my body to help get me pregnant and retain that pregnancy, then I wanted to be able to look into the whites of both mine and Jason’s eyes and say “I did all that I could do.”  When that still wasn’t enough, it hurt like hell, made me angry and for a moment I believed all the effort and sacrifice had been futile.  But of course, they weren’t.  They weren’t the be all and end all, but a healthy body is certainly a positive contributor to enabling it to function in the way it was designed for sure.

And so, to anyone teetering today, tempted by a glass of wine, extra sugar in their tea or a tasty cream bun, remember your end goal.  You can do it and you will feel good knowing you have done all that you could do, whatever your outcome, be it fertility or otherwise.  Take control, be strong in mind and body and don’t fall foul of the 22 January curse.  Good luck! xx

 

 

Wisdom in one so young

So this morning I sadly received a text from a friend whose second IVF cycle failed.  BFN as they say (well they say Big Fat Negative though admittedly the ‘F’ always meant something else in this house!)  I was so terribly sorry for her and angry at her misfortune and it took me right back to those dark days when I would just want to scream and shout at the lack of control I had over the result.

As I walked into the kitchen shortly afterwards, our 18 month old twins were tormenting Zac, soon to be 7 in just 15 days time and he was looking rather harrassed.  He was trying to complete a game of Fifa on his iPad and the babies were trying to grab it and were screaming in frustration at him.  I laughed at the chaos around me, and poor Zac’s plight, and said: “Zac, when you are all grown up, do you think you would like to have babies?”  I was totally surprised at his answer.

“Well I guess so, if I’m lucky.”  When I asked what he meant he simply said: “Well some people can’t have babies can they?  I might not be lucky enough to have babies.”

So grown up, so wise, so accurate.  I felt an instant pang of guilt.  Had I created a world around my young boy that had taught him one of life’s cruel lessons as such a tender age?  I know we had brought Zac along on our journey to extend the family and I was always careful when explaining to him why he didn’t have a brother or sister at the time, but it had clearly left a mark on him and made a lasting impression that I was ashamed I had not continued to nurture.

As I stewed in my own thoughts and Zac rescued his iPad from his now tantruming little brother he said: “I guess if I say my prayers and am a good boy I might have babies, but don’t worry Mummy, our babies haven’t put me off, they are only annoying sometimes!”

Jason and I laughed at his wisdom and his conclusion that the twins were only temporarily annoying.  Yet today, I’ll say my prayers for my friend, remembering how lucky we were to have ours answered and how extra lucky our babies are to have such a wonderful big brother in Zac.

So near and yet so far

In the six hours since the MLTG page went live on the world wide web, it already has 50 likes, 14 shares and I have 4 orders for my book!  How cool is that?  And yet it is the 3 comments made on the page that mean the most.  Sitting for hundreds of hours pouring my heart out into the laptop, often felt like the loneliest place on the planet.  I will never forget the moment I read a paragraph in Zita West’s Guide to IVF (bible) that mentioned existing parents often had a feeling of guilt.  At last somebody understood.  That was me!  I was shocked as I read the words but I was also immensely comforted.  I’ll also remember the shock at learning that our situation actually had a name ‘Secondary Infertility’. At last I felt ‘defined’, part of a group and suddenly not so alone.  To receive feedback today from 3 people who are currently in a similar situation and have thanked me for sharing my story is one of the strangest feelings I have ever felt.  In the words of one: “I honestly can’t relate to that enough.  You have captured how I’m sure a million women feel.  At a daunting yet exciting time this had given me so much positivity for the future.”  I have always dreamed of getting this book published but tonight, this means more to me than any Amazon listing.  I know how she feels, she now feels understood.  She doesn’t feel so alone and I hope she can start to shake off a little of the guilt she has been carrying round.  Yet I feel sad that despite launching on the world wide web, this friend lives just 10 minutes away.  We live so near, yet when you are struggling alone, we live so far away.  Let’s talk more.  Let’s share more.  Let’s drop the shame. x

Bravely does it…

So here I am finally getting ready to make my site go live and this feels like the scariest thing I have done in my life!

This book has taken three years to write and it is strange to think that I started to write before I even knew the term ‘secondary infertility’ existed. In fact, I started whilst going through our first cycle so that was even before I had any reason to think I would need a term to describe our situation!

I am pretty sure that had I known about our journey and the four attempts before I started the IVF treatment, I’m not sure I would have ever taken the first step. It was a daunting experience but one I embarked on fully expecting to get pregnant first time. I hadn’t anticipated the darker side of failed attempts. Looking back, whilst this was naive, it was also my saviour, for it made me get on with the treatment and have a go. It was a long, painful journey that would not have been so easy to start had I known all that I was in for over the next 14 months.

And yet, sat here now, about to launch my blog and launch my Facebook page, this feels like the scariest journey I have ever made in my life.

Sharing my thoughts, our most intimate moments, not to mention my possible grammatical errors, all seems pretty daunting.

And then I remember that couple on the sofa that have been in my thoughts whilst writing every chapter. Somebody, somewhere, feels guilty for wanting another child and ashamed that they feel so desperate for a child when they know they are blessed to already have one, or more.

They are my saviour right now. For if sharing our story can convince just one couple that it’s alright to feel the want for more children, that you’re not greedy and you should not feel guilty, then that is all the motivation I need to press ‘go live’. It doesn’t feel so scary afterall.