Progress? I’m not sure

So what’s happening?  Well this all started with writing down my journey to help another couple faced with SI.  Then it became about achieving an ambition to have a book published which then turned into a mission to demonstrate to publishers just how big an audience is out there needing information on this topic.

It is now a crusade.  Having spent 2 years (whilst setting up a new business and running a family home) doing my bit to raise the profile of SI, I’m feel we’ve taken one step forward and two steps back.

So yesterday it was finally confirmed that SI would not feature at the Fertility Show in November because ‘it didn’t fit in’.  I was gutted.  We have recently determined that statistic that 1 in 3 of the 1 in 6 couples struggling with fertility already have a child – that’s 1 in 18 with Secondary Infertility.  It’s great to now know this stat, but it’s frustrating that people still don’t recognise the condition to give it focus.  It’s easy for them to say “Secondary Infertility is important” but still they don’t give it the attention and exposure it deserves and as a consequence the condition remains in the dark, as do sufferers.

My first problem with SI was simply that I didn’t know the name existed.  If we could just shout the name out from the rooftops more sufferers would become engaged.  If we could get them to identify with their own situation they would know where to seek more help.  That would be a huge start.

If we could help treatment providers and support networks to learn how to deal with SI sufferers and their unique situation it would help make SI “fit in” and therefore provide the appropriate information and support in clinics.

My messages are simple

Secondary Infertility is still Infertility

Sufferers are not alone, should not feel guilty and are not greedy

There are unique and specific challenges that need to be addressed for sufferers

More people in the Infertility profession need to recognise the condition

Communication and awareness must be improved

Next month I will be launching a brand new website with information and support specifically for SI sufferers.  A brand new online support and information portal that is UK based.  We may have not made it to the show in 2016 but boy oh boy, 2017 here we come!!…….

 

 

 

 

 

 

 

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4 thoughts on “Progress? I’m not sure

  1. thepigspearls

    Very interesting topic. Does Secondary Infertility still apply to women that have gotten pregnant but did not have full term pregnancies? The ability to get pregnant and stay pregnant are almost two different issues these days. I am 27 and did a freeze all cycle earlier this year, but have a friend the same age with one child and struggling to get pregnant a second time. Doctors refuse to test for infertility for people that have histories of just getting pregnant and women under 30. So frustrating!

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    1. mrsd1209 Post author

      Hi there.
      The World Health Organisaion defines Secondary Infertility as “when a woman is unable to bear a child, either due to the inability to become pregnant or the inability to carry a pregnancy to a live birth following either a previous pregnancy or a previous ability to carry a pregnancy to a live birth” I find it incredible that you have to have a certain number of miscarriages before any investigation is undertaken. The “official” definition may say one thing but people’s perception and the treatment available are often quite different. I wish both you and your friend the best of luck and thank you for your comment. Sorry it took so long to reply but I missed the notification xx

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